My Epileptic Life

As purple day quickly approaches I have decided to blog each day this week, but rather than my own thoughts and experiences, each blog will be written by other individuals affected by epilepsy, their experiences, fears and challenges.  Today's blog is written by Cindy Angulo who has a gorgeous daughter called Vera. Vera has Sturge Weber Syndrome and epilepsy. Here are Cindy's thoughts on having a child with epilepsy.  Massive thank you to Cindy for sharing this with me.  How has having a child with epilepsy changed your life?  Gosh, that is a loaded question! Well for starters, it has made us aware of territory that is so foreign to us: complex brain injuries, special needs, motor delays and development, infantile spasms, febrile, tonic, focal impaired seizures. We are always on high alert in case Vera has any seizures. We have bags packed in the trunk of our car with extra clothing and snacks in case we need to be admitted to the epilepsy center for a wee...

It has been a rough couple of weeks in Jade world. The past two weeks have included seizures, bruises, emotional and physical pain, a rubbish teaching week and plenty of tears. The past two weeks have been HARD. They have taken a toll on not only my physical health but also my emotional and mental health.    I am a pretty happy, positive person. I think being positive is just in my nature and even on the days when I don’t feel particularly positive or when life doesn’t seem awfully  sunny  I always try to have a “glass half full” perspective on things. I put my lipstick on, slap a smile on my face and get on with life. Fake it till you make it and all that. These past two weeks, however, my glass has not been half full, it's been empty. Infact, it's been that empty dust has begun to gather in it, a bit like the vase of sweet wrappers my nanna biscuit kept on top of her kitchen cabinet for about 20 years. When we took that bad boy down, I thought it was snowing....